The posts have been few and far between because Kate is trucking along very well and we haven't had tons to report. Today was a great clinic day for Kate. She started out with the dreaded finger poke but braved through it. It is kind of funny how she views that as the worst part of her trips to the hospital and not the nausea, lumbar punctures or port accesses.
Her hemoglobin, hematocrit and platlets were all nearly within normal ranges and her ANC was 1500. They are going to keep her chemo doses (Vincristine and Methotrexate) where they are (at %75 strength) for the duration of her treatment because her blood counts are right where they should be. We are also so happy that since beginning the monthly IVIg transfusions Kate has been doing remarkably well - No fevers and barely any colds.
Despite being premedicated with Tylenol, Zofran (anti-nausea) and IV Benadryl, Kate still had a little reaction to the IV Pentamadine (antibiotic) today. She told me that her mouth/tongue felt "funny and wiggly" but gratefully no swelling developed so we kept on. The IV Benadryl worked like a charm and Kate slept for the entire 5 hours there waking up only 15 minutes before it was time to go. What a blessing to sleep away hours of treatment with the only sign of trauma being bed head!She's set for another 4 weeks until we go back for her lumbar puncture, IV chemo and transfusions.
4 comments:
I love the updates, it makes me think that I am just right next door to you. I love you guys, love you Kate! Keep that cute grin on your face
WOW is she growing into a gorgeous girl. The update is ALWAYS appreciated. Now, will Benadryl put ME to get for 5 hours? I'd like 5 hours of uninterrupted sleep! I thought that would end when babies were gone...now it's OLD AGE that wakes me up! Seriously, thanks for the update. I knew "today was the day" but I feel bad bugging you.
good stuff. :)
So happy she is doing well. She is a brave little girl. Keep the good news coming :)
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