Thursday, April 3, 2008

Still Holding

Today we went to the clinic today to check on Kate's counts. Her ANC is still below 500 (at 480) so her daily chemo, Methotrexate and Bactrim will continue to be held until we recheck the counts next week. From the rest of her blood counts we can tell that the bone marrow is working, it's just that her cells are all being used up fighting this current virus. Despite her junky cough, Kate is feeling well and is ready to go back to school. I do get nervous sending her with low counts but I am reassured that it is best for her to be there.
Also, her IgG level was low so they are going to start giving her monthly transfusions of that. Hopefully the immunoglobulin transfusions will help keep her healthier more of the time. Additionally, they are probably going to be discontinuing her Bactrim, as it can also be causing her to have low counts. Instead, she'll get a monthly IV antibiotic dose. The only downside to this really, is that our clinic days once a month will be pretty long with IV chemo, followed by IV antibiotic, followed by a 3 hour IV Ig infusion. It really is a very small inconvenience if it keep her from getting all of these little viruses.
We both left the clinic feeling happy for some reason. There is something very comforting about having a plan and moving forward for us planners. Kate is feeling good too, so we are keeping on, keeping on! ;)

7 comments:

Anonymous said...

I'm with you. I love a plan, Stan. We're going to elevate our thoughts. Think Up. Think Up. Hugs & Kisses.

Kasey said...

I hear ya on having a plan. We'll keep you all in our prayers.

Christy said...

Every time Eliza gets a fever her counts would drop. So that is normal I guess. They also always hold her meds until her counts get back up. Eliza has had IVIG twice. The first time she got a REALLY, really bad headache which lasted the entire day. So the second time they did a lot of pre-meds (Tylenol and Benadryl) and she was fine. Just thought I would let you know of that possible side effect. Good luck and I am so glad she is feeling better and that you are home!

Wendy Niceler said...

Glad Kate is home from the Hsp and that things are moving forward. Maybe I shouldn't put this out there for all to read but I'm going to anyway. The other day as I was going to bed and saying my prayers and for some reason I started thinking about something you wrote in a blog shortly after Kate's Diagnosis about how nice it was to all be at home together under one roof. I had to give thanks for that blessing (of being at home with both my children safely in bed) right at that moment and I don't think I would've ever realized what a blessing that really is unless you had said something about it. So, truly glad you are all at home together.

anne-ross said...

love you guys + praying for kate right now. god bless!

Kari said...

I am happy to know the plan has been established so you can move forward. You are both so strong in all of this! {{{{{HUGS}}}}} to you and Kate!

Anonymous said...

Hey, Kate Hansen!

Kate Hatch asked me the other "where does Kate Hansen live"...we're all thinking about you and love you more than words can say.

We'll see you in May!