I wanted to post a current picture of Kate so you could see that she looks great despite the treatment. Sitting and watching TV does seem to be one of her favorite things to do as of late, but who can blame her. Ava has no excuse. She's just a couch potato! :)Thank heavens, today was a good clinic day. I don't think that Kate (or I for that matter) could have gracefully handled another difficult day. (Wait, that implies that I handled the others gracefully. You know what I mean. :)) In fact, today was so good that I think someone in the clinic must have access to my blog and has read my last 2 frustrated entries. Today we were greeted by the child life specialist (a person who's sole responsibility is to ensure the child's comfort and ease - we love Christy!) who chatted with Kate for a while about nothing in particular. She brought fun toys in with her to distract Kate while they accessed her port and then returned later with about 4 things from the prize box for Kate. Coincidence? I think not. Whatever the impetus, I don't care. I am thrilled that our nurse was wonderful with Kate today and that we made it through the process without any tears. As if that wasn't enough, Kate's port - the one that was clotted in the ER - worked today without any difficulty! Happy Day!
Kate is very tired though and her counts are, "in the toilet" as they say. Her ANC is now 100, which is basically nothing and so she's considered to be immunocompromised. Her red blood cells and platlets are hanging in there so she doesn't have to get any transfusions yet. They say that in another month it is likely that she'll need them though. Also, she has developed oral thrush but that is easily treated with Nystatin liquid.
In other good news, Kate's bone pain has improved and is controlled with Tylenol alone so we are super happy about that. We also have only 1 more week of steroids to go. Yea!
8 comments:
Very happy to hear the good news... So proud of you Kate !
HAVEN'T CHECKED THE BLOG FOR A COUPLE DAYS... UNBELIEVABLE FEW DAYS! KATE IS LUCKY TO HAVE A EDUCATED AND VOCAL MOM!! WORTHENS SEND OUR XOXO.
good news about the port--the less trauma the better, right?? i know i've said it a thousand times, but you'll just have to hear it a thousand more--you are so brave and amazing and strong. kate is all of the above too, but Carolyn, you amaze me. take care--girl's night soon??
Jen
YEAH! Hey, if it works, give EVERYONE WHO SEES KATE her blog site. Then they can find out what's REALLY happening... Whatever works for her. Seriously, I couldn't wait to get home and find out how your appointment went. Glad to hear it all went well today. Hey, tell Kate and Ava that we can all be couch potatoes together. I like WONDER PETS, too. P.S. You should have seen the look of amazement on Abby's face when I sang wonderpets.
Hooray for a good clinic day!! Not that it makes up for the other people's bad behavior, but makes for a better experience today. Hugs and kisses to you both ... hang in there!
Go Kate! We love you
Glad to hear this visit surpassed the last two! 3 cheers for Christy with the toys and prizes (and let's not forget the one that successfully accessed the port)! :)
I'm smiling...
Love you guys,
Anne
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